User Stories: Thalassemia

“I am a high school senior with Thalassemia major. My condition has gotten more severe lately, and I’ve been told that I may need a bone marrow transplant. I am adopted, so it will be harder for me to find a perfect match.


Next fall, I will be going to college and moving out of my city. My parents are worried about me being alone and not knowing anyone. I am nervous too; I will soon be responsible for my own health. I’ll have a lot to deal with as I start this new chapter in my life.”

Stephanie Oey